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Indiana Chapter Membership

   Your membership dues are important to the survival of the Indiana Chapter, but even more important to those who depend upon our services. When you send in your annual membership dues, you can feel confident that your money is going to help those in your community. Through your generosity, the Indiana Chapter will continue to provide necessary services such as: 

• Social Worker Services
• Support Groups
• Newsletters
• State Conferences
• Education Programs
• In-Service Training
• Research

Your Indiana Chapter of the HDSA is working to raise money, too ! Here are a few of our top ongoing fund raising projects: 

Local Fundraisers in Indiana:

• Membership
• Celebration of Hope Dinner for the Center of Excellence
• Northern Indiana Hoop-A-Thon
• Central Indiana Hoop-A-Thon
• Golf Outings
• Family Walks
• Runs

HDSA National Fundraisers:

• “Drive Toward a Cure” HDSA BMW Sweepstakes
• HDSA Amaryllis Campaign

History of the Indiana Chapter

The Indiana Chapter of the Huntington's Disease Society of America is a voluntary health organization dedicated to improving the lives of people with HD and their families. Indiana's quest for the cure for HD began in 1969 as the Committee to Combat Huntington's Disease was formed with the support of Marjorie Guthrie. Marjorie , widow of folk legend Woody Guthrie, believed in the strength of the people in Indiana...and the chapter has continued in it's fight against HD for almost 30 years !  
   At present, we have an Executive Board and a Board of Trustees. Board meetings are always open to the public and are held on the first Saturday of March, June, September and December. Representatives across the state continue to meet and develop the future plans of the chapter. 

In January of 2005, Indiana University Medical Center and the Indiana Chapter of the HDSA were designated a Center of Excellence.  Through this collaboration, the outstanding care and services that patients received in the past were enhanced by the addition of more services.  The Center of Excellence also allows patients to obtain services at one location, therefore making the services easier for the patients and their families.  

   The Indiana Chapter will assist individuals and families affected by HD to cope with the problems presented by HD; educate the public and health professionals about HD; be advocates for all interests of those affected by Huntington's Disease.; and promote and support research on HD to eradicate this fatal disease. 
  
  
  

Services

   Information as well as a Referral / Lending Library are available to both families and healthcare professionals. Literature including articles, pamphlets, books, and videos are available for distribution. 

   Support Groups meet in various locations throughout the state of Indiana. Activities include supportive interaction; sharing of current information on HD related issues; social events; and fundraising. 

  Inservice Training medical professionals of all types can learn more about Huntington's Disease.  Our local expert will conduct training seminars.  This time is invaluable for the quality of life for the person with HD and for the care staff of facilities.

  State Conference is a day full of information, education and fellowship. Our conference offers the leading researchers, latest medical breakthroughs and workshops on topics important to HD patients and their families. The state conference is attended by everyone from symptomatic and at-risk individuals to caregivers and medical professionals. 

   Periodic Newsletter offers information on the latest HD research, suggestions for caring for patients, meeting and conference notices, announcements of featured speakers who are experts in HD research and the current laws, as well as proposed legislation as it affects HD patients and families.

Additional Resources and Information